The CrowdCare Foundation connects patients with top researchers in the field to explore gaps in current research funding. They then select specific projects that will find the most urgently needed answers to find a cure. Your contribution toward these research projects is carefully vetted by an expert Scientific Advisory Board and targeted toward the most promising current progress toward a cure.
Dr. Hermann Einsele and Dr. Michael Hudecek, Myeloma Crowd Research Initiative Grant Winners, CAR T-Cell Research in Multiple Myeloma
The CrowdCare Foundation aggregates and shares the latest research in patient-friendly language on each disease website and provides social media groups where patients can exchange information. CrowdCare also hosts live patient meetings and seminars. Your contribution in this area leverages the desire and capacity of highly-motivated patients to dramatically accelerate self-advocacy, providing better outcomes and a push towards a cure.
For rare diseases like Multiple Myeloma and ALS, diagnosis data, lab values and disease genetics hold the secrets to a cure. Collecting and aggregating all available patient data into formats that researchers can use is an extremely important and efficient way to accelerate research. We created Healthtree® to do just this. HealthTree is a new tool multiple myeloma patients can use today. In the future, we will include ALS and other terminal disease patients on the platform.
Seth Christensen, ALS Diagnosee (2010), Co-founder and Executive Director of ALS Crowd
