PATIENTS WITH TERMINAL & RARE DISEASES DON’T HAVE THE LUXURY OF WAITING PATIENTLY FOR A CURE
UNIFY PATIENT COMMUNITIES
We believe that patients are stakeholders in their disease and need a seat at the table to help find a cure. We also believe that a unified patient community can help support the medical community and influence the direction of new research. As patients ourselves, we understand the important issues patients face. We create patient-centric websites for multiple myeloma and ALS to provide a place patients can go for support and information about their disease.
SUPPORT PATIENT EDUCATION
We believe that educated patients get the best outcomes.We post recent news on our patient community sites and also host the Myeloma Crowd Radio and ALS Crowd Radio shows, interviewing top researchers in the field. This is an excellent source for patients to learn about up-and-coming research in terms patients can understand.
CONNECTING PATIENT DATA
Medical data today is kept in silos, locked from view of patients and the research community at large. We believe in connecting the dots between relevant data from multiple sources to give researchers, doctors and patients clues into the causes and possible solutions of these complex diseases.