About Us

The CrowdCare Foundation is a 501(c)3 non-profit organization founded by rare disease patients who are dedicated to patient support, education and advocacy in support of rare and terminal diseases. We know how overwhelming an incurable diagnosis can be both physically and emotionally. The CrowdCare Foundation is a patient-centered organization created to support patients at each step of their disease journey – from diagnosis, through care and on to a cure.

Jenny Ahlstrom

Jenny Ahlstrom

President, Founder, Multiple Myeloma Patient and Board Member

Diagnosed in 2010, Jennifer unwillingly joined the world of multiple myeloma. With a background in entrepreneurship, systems engineering and marketing, she is dedicated to helping other multiple myeloma patients find a cure for the disease.

She launched the CrowdCare Foundation in 2012 to bring patient involvement into the acceleration of a cure for rare and orphan diseases. In 2013, she began the mPatient Myeloma Radio series in order to educate patients about the latest in research and to promote participation in clinical trials. She also began the Myeloma Crowd website to aggregate all relevant information about myeloma from a variety of sources. She is a wife and mother of 6 children. Prior to her launch into full time motherhood, she was a Systems Engineer and Marketing Representative for IBM.

Seth Christensen

Seth Christensen

Co-Founder and Executive Director ALS Crowd, Board Member

Seth Christensen is an ALS diagnosee (2010), Co-Founder and Executive Director, ALS Crowd Division of the CrowdCare Foundation.

Seth also hosts ALS Crowd Radio (www.alscrowd.org), a show interviewing the top ALS researchers to help educate patients on the latest in research and support new ALS clinical trials. Prior to joining CrowdCare in 2014, Seth was a Director with Microsoft‘s Corporate Venture Integration Group (VIC), where he led over 40 corporate acquisition or divestiture engagements, as well as founding/developing VIC‘s divestiture practice. Prior to joining Microsoft in 2008, Seth was a Senior Integration Manager with Intel Capital‘s M&A Integration group for nearly five years, and a Senior Buyer with Intel‘s Procurement Group for two years. While with ICAP, Seth led or co-led fourteen deals ranging from $2M-$6B and authored or co-authored Intel‘s due diligence, integration planning, communications, closure, value capture/creation, and measurement processes for domestic and international transactions. He executed deals in the U.S., Canada, Europe, the Middle East, and Asia.Seth holds a BA from Brigham Young University, and an MBA from the F.W. Olin School of Management at Babson College.

Adam Blum

Adam Blum

Board Member

Adam Blum is a senior technologist, entrepreneur and advisor. He has been CEO/CTO/VP Engineering of several successful startups, with over $600 million in exits. He has been an adjunct professor at UC Berkeley and Carnegie Mellon and is the author of three computer science texts, including the first book on web server development. He is now CEO of OpenEd - the largest K-12 resource library and "operating system for personalized learning", used by many other ed tech companies to provide just the right resource for each student.

Owen LeGare

Owen LeGare

Board Member

Owen LeGare is a retired Electrical Engineer with experience designing, implementing and troubleshooting electrical and control systems for a variety of different industries. He also managed the computer systems for the Viticulture & Enology Department at UC Davis for six years before retiring. He learned about Multiple Myeloma when his wife and life long dance partner http://sharondugdale.com was diagnosed with the disease. Reading stacks of scientific papers and clinical trial results did not help find a treatment that could save her, but it did make clear how little understanding there was of the different types of myeloma and the best treatment for each type. The recent advances in machine learning and artificial intelligence could improve outcomes but it will require the sharing of treatment and response data from many patients to produce a large enough data set to find meaningful answers.

Jason Kap

Jason Kap

Board Member

Jason Kap has worked in academia, professional services, mid-size companies, and corporate giants. Entrepreneurial ventures over two decades have taken him to the Mohave Desert in a search of lost treasure, to purchase a biometrics start-up and to participate as an angel investor. He currently leads Zipwire Incorporated, a startup he founded in Boston, Massachusetts in 2013.

Sondra Hudgens

Sondra Hudgens

Secretary/Treasurer

Sondra is the sister and caregiver of a cancer patient.